Because the work of NeurOmics is so closely linked to the development of the RD-Connect platform and because the issues discussed by patient advocates have such a large overlap, it was decided to bring all these groups together in one, overarching council.
The Patient Advisory Council (PAC) now represents NeurOmics, EURenOmics and RD-Connect and examines ethical, social and participatory questions linked to research taking place in the context of the three projects.
